What is best for baby Charlie Gard?

What is best for baby Charlie Gard?

What is best for baby Charlie Gard?

The application came after both Pope Francis and President Donald Trump fuelled worldwide attention to the case, with hospitals in Rome and the United States offering to provide Charlie the experimental therapy.

The U.K.'s High Court has set a hearing regarding Charlie's case for Thursday.

Maxwell Smith, who lives in the United Kingdom with his parents, was diagnosed with mitochondrial depletion when he was only several months old, but at the age of five, he is alive thanks to nucleoside bypass treatment.

But doctors said it was "right to explore" any new evidence and said they were seeking the court's view. "I will be the first to welcome that outcome", Francis added.

The decision came after an emotionally charged hearing Monday in which Gard's mother wept in frustration and his father yelled at a lawyer.

"If we're willing to execute the Supreme Court ruling, the English hospital could accept Charlie's transfer to Rome".

The Great Ormond Street Hospital, where Gard is now provided life-support, appealed to the court for a new trial June 7 after two worldwide hospitals came forward with evidence.

Gard suffers from a rare disease called mitochondrial DNA depletion syndrome which causes progressive muscle weakness and brain damage. As a result, he is unable to move his arms or legs or breathe unaided. His parents want to take him to the U.S. for experimental therapy, which they say offers their son a chance of improvement.

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But British and European courts have so far sided with the hospital's decision that the 11-month-old's life support should end, saying therapy would not help and would cause more suffering.

The judge asked the parents, Connie Yates and Chris Gard, to produce the evidence - about the effectiveness of the experimental treatment that could help their son - by Wednesday 2 p.m. local time (9 a.m. EDT).

Great Ormond Street Hospital, which had meant to turn off the baby's life support systems, applied for the court hearing because of "new evidence relating to potential treatment for his condition".

Grant Armstrong, representing Charlie's parents, said there was encouraging evidence from researchers at the Vatican's children's hospital about an experimental treatment.

"It turned it into an global issue, a lot of people are outraged by what's going on".

Speaking outside the hospital, Yates said: "He's our son, he's our flesh and blood".

The official also said the president wants to be helpful without placing undue pressure on the family.

It ruled the children's hospital could turn off his life support. We feel that it should be our right as parents to decide to give him a chance at life.

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