Charlie Gard dies after life-support withdrawn in hospice

Charlie Gard dies after life-support withdrawn in hospice

Charlie Gard dies after life-support withdrawn in hospice

Charlie Gard's parents Connie Yates and Chris Gard arrive at the High Court ahead of a hearing on their baby's future, in London, Britain, July 24, 2017.

His parents fought for the right to take him to the US for an experimental therapy they believed could prolong his life. It said the proposed treatment had never been tried on a human with Charlie's condition and no tests had ever been done on mice to see whether it would work on a patient like Charlie.

Parents, Connie Yates and Chris Gard, and GOSH had until 12:00 BST to agree Charlie's end-of-life care. They had been denied the chance to take him to the US for experimental treatment as well as their wish to spend a week with him in hospice care at home.

Boyle is a special correspondent.

"We deeply regret that profound and heartfelt differences between Charlie's doctors and his parents have had to be played out in court over such a protracted period", a GOSH spokesperson said in a statement.

9 July: Charlie's parents join a demonstration outside GOSH, delivering a petition of more than 350,000 signatures calling on doctors to allow him to go to the US.

Britain's courts, after hearing a wealth of medical evidence, ruled that it would go against Charlie's best interests to have the experimental nucleoside therapy advocated by a USA professor of neurology, Michio Hirano.

Great Ormond Street Hospital (GOSH) said it was not in his best interests to spend a long time in a hospice. Charlie will remain in hospital, where nurses have volunteered to take care of him.

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But despite the global attention brought by his case, he died exactly one week short of his first birthday.

But they said Charlie's parents were still in dispute with doctors over the detail of hospice care plans.

"As the judge has now ruled, we will arrange for Charlie to be transferred to a specialist children's hospice, whose remarkable and compassionate staff will support his family at this impossible time".

Supporters around the world donated £1.35 million ($1.75 million, 1.5 million euros) via an online fundraising site to support his parents and their efforts to keep their son alive, while 350,000 signed a petition demanding that he be allowed to receive experimental treatment in the US. "Sweet dreams baby. Sleep tight our handsome little boy".

"It has been a uniquely painful and distressing process for all concerned", the spokesperson said, adding: "Every single one of us wishes there could have been a less tragic outcome".

May God welcome Charlie Gard into his loving embrace in his final days on earth and bring his parents comfort and strength. Mr Justice Francis says he will consider any new evidence. The 11-month-old's life-support machines will be switched off shortly after he is moved to the hospice. Both said an experimental treatment known as nucleoside therapy had a chance of helping Charlie.

Of further concern, the battle between Charlie's parents and his physicians exploded into public view just as the British Medical Association (BMA), the nation's largest doctors' union, endorsed abortion on demand.

At its heart, the Charlie Gard case is more than a debate about end-of-life issues.

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